I wanted to start this blog to raise awareness and tell my story of my battles with severe Dysautonomia, in the form of POTS & AAG and my life with Chronic Illness.
Little bit about my history?
I first became acutely unwell in early 2010 following a snowboarding holiday overseas for 3months. I was a perfectly healthy young twenty-something yr old girl who had finished a degree in Occupational Therapy and had just started my second degree of Medicine which I was super excited about. Life was seemingly perfect; I ran often, played netball, partied, socialised and lived a very active 'normal' life. I loved life and my little bubble world - it was Bliss!
Where am I now?
Now 4 years along and I am still very unwell. I've had almost every aspect of my autonomic nervous system affected by Dysautonomia and as a result have spent the last 3.6 years as an inpatient in hospital. Yes, that's right...6 months at home since 2010!
Sadly, my Dysautonomia is not a resolving one as we initially had hoped for. Instead there is no cure but a good possibility of better management. And so this is my life now living with an incurable sometimes invisible Chronic Illness.
What are my interests & why blog now?
I don't know what has prompted me to finally pick up my computer but I'm here now & looking forward to see what comes of it. Despite how I sometimes feel, Dysautonomia is not the only aspect of my life. I have an Amazing family, support network and some true friends to top it off. I have a few strong interests I try to distract myself with when times are tough, like:
- candle making
- music of any sort
- TV series and movies
- reading Jodi Picoult and alike
- studying
- social media
Anyone else have similar interests??
This first entry is coming to you from my hospital bed at 9.30pm whilst 1 89yr old patient screams out "help!" countless times per hour at the highest decibel she can manage and another chants endless prayers in competition. Joy oh Joy I'm just so happy to be here 😉
For some crazy reason, which I'll most certainly regret, this is a "before illness/me today" image. I've put this picture up as part of demonstrating my story. I started this blog to tell my story & so if appropriate I will use pictures to supplement that. I want people to understand a bit about my life and I also want this blog to me a bit of a memory catcher for now. If you need to shut your eyes to get away from my photos please feel free!!
If you're interested in my Story or have similar experiences or interests please stick around and have a read.
xoxoxo
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