Thursday 28 May 2015

Cautiously Optimistic

It's lovely when you can see progress.

It's not something that we've seen continuously for the past 5 years but it's something I am lucky and grateful to be experiencing more often now. And it feels great!!
For a long time I have been idoling along and putting in the work with only small results, only to be knocked back to square one Every time. But, for the first time ever I think I am going to be OK.


I can't really say exactly why I believe things will be different this time, I just do.

With this feeling of cautious optimism and happiness comes feelings of nervousness that I might do something wrong or my body might fail me again and land me in hospital for months. 
I have tried so hard since becoming ill to keep looking forward. At times it has not been possible to keep this state of optimism and it has been a real struggle to stay focused and maintain a somewhat positive outlook, but I have tried. Each time I have been knocked back they have been such cruel & viscous robberies of the life I was looking forward to. Each time I've had to rebuild my faith that things will improve and that there will be better days ahead. This recent long admission was no exception, with losing a dream of mine and facing one of my biggest disappointments & losses to date. 

Now though, I feel like something has changed. I am on a nice but slow path of improvement thanks to my treatments & I just feel 'hope'. I still feel nervous about the future but I also feel more hopeful that life might just keep getting better. I am not disillusioned, I do know that my condition is unpredictable & that no matter how determined I am, my body has proven to show no mercy. I am not expecting miracles or a magical cure, I'm simply enjoying the calm right now. I am aware, I am wary but I am also excited at the prospect. A prospect that I haven't really had in a while.

I've got mountains to climb before I am independent & even a semi-functional human being, but the mountains aren't looking so far away right now, so I'll embrace this panorama and enjoy the comfort it brings.

xoxo

Monday 4 May 2015

The unwanted anniversary

Sometimes I wonder if there is some weird,  Higher allocation system or if it's plain bad luck that I landed here in this hot mess of chronic illness...

Today marks a bitter & unpleasant day. It was this date in 2010 that I was first admitted to hospital with crazy symptoms & no idea what was going on. I had no idea that I would then not leave the hospital for over 3years, instead remain unwell & stuck inside the four walls of hospital trying to get function and my life back.

If someone had told me that this day was going to be the start of my long & very difficult health journey I would've laughed & not thought this possible. Weeks before I was playing netball, flying interstate for 21st bdays & studying to become a doctor...there was no way things could go so drastically wrong so fast.
How wrong I was!!

Here I am now years on and still battling each day to better myself & rebuild a life I want to live . I'm definitely not one to say that I'm happy this has happened to me, as I do not appreciate this life lesson and would've been 110% fine without this experience.  However, I have definitely learnt much about myself & my surroundings throughout this. I have also met some amazing people & been humbled by those who have stood up to support me during my toughest times, & so for those aspects I am grateful.

So this day marks a new year on my journey & another year I vow to try my hardest to keep fighting and stay focused on my goals. I have already spent some months in hospital this year but I pray that there will be no long admissions in my future. My condition will never go away, but I have faith that there has to be more for me than where I'm at now. Quitting is not an option - regaining the life I want to live is the only priority. 💪